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Submission - Autism Jersey - Follow-up Review of Mental Health Services - 1 March 2022

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AnonymousResponses

Q1

Q2

Q3

Q4

Q5

Q6

1

Yes,Ibelievethereisalong

waitinglist.

Nottoosure

Nottoosure

draftinginmorequalifiedpeople tohelpthewaitinglist

No

Nottoosure

2

Yes

Unnsure

Unsure

Lesswaitingtime.

Unsure

Yes

3

YesIthinkithasassomanystaff havehadtogointoisolationor actuallyhadCovid.Weareavery smallteamcomprisingof4

membersanditimpactedour staffingrotaatonepoint.

Fromanonworkperspective,Ihave afriendwhowasinOrchardHouse anditseemstomethatthefacilities thereareverybackwardwithnotal otofallowanceforpersonalspace.I

alsothinkthereisabigneedfor highfunctioningautisticchildrento havemoresupportwiththeright schoolasmyotherclientendedup

inLaSenteanddidnotgointheend

ashecouldnothandlethe behavioursofothers.Thistomeon

arichislandisunacceptable.

Ijustthinkitneedstocomeuptospeed

Consistentstaffandenoughof them.Alsoproperfacilitiesforthe patientsnotjustatvroomwhere

everyonehastogoandwatch together.

No

Formyparticularclientithas mademyclientanxiousofmasked peopleintheshopsandhedoes

notgoinmanyshopsnowdueto

this.

4

Noknowledgeofthis

Noknowledge

Noinformation

I'mnotinpositiontocomment

No

Noopiniononthis

5

Yesnotashelpfulanymore.

Youthfulminds,mindjerseyandI believetheyaresettingupagroup

forpeople25+.

Listeningloungemyexperiencewasn'tgreat.

Lessofawait.Findwaysaround helpingpeoplewithoutbeingon medication.Morefreeservices needed.

Ithinkthatsomeworkplaceshave beenundergoingmentalhealth

awarenesstrainingsothishas beenabonus.Morefundingis neededtogetmorestaffonthe courses.

Longerwaitinglists.

6

It'scausedahugeamountof

anxiety.

Moreawareness.

Nocomment.

Morepaidstafforfreeservices

None

Moreneed

7

Yes,Ithinkthattherearepositive andnegativeaspects.Positive

impactsarethatithashighlighted therequirementsneededtofulfil

andimproveourmentalhealth serviceandIfeelawarenesshas

increasedasaresultoftheimpact

Covidcanhave.Therealso appearstohavebeennewand improvedindependentservicesto supportpeoplewiththeirmental

health,intheabsenceofadequate Governmentsupport.Negative

wise,ithascausedmoreissuesin

termsofstaffing,especiallywith travelrestrictionsduetoCovid andtheincreasedcostofliving andaccommodationinJersey whichmakesitdifficultfor qualifiedstafftorelocateto Jersey.Anincreaseddemandon servicesasaresultofCovidhas alsoincreasedwaitingtimesetc.

No,notreally.TheonlypositiveI canseeisthattherehavebeen reviewsofexistingprovisionsin searchofimprovement.And

independentorganisationshave takenoncasesthatwouldnot otherwisebesupportedbythe Government'sservicesduetolackof resources.Thoseservicessuchas TheListeningLounge,etc.

Yes,moredemandandlessprovision.

Morestaffingtoofferawider supportsystemandtoreduce waitingtimes.Morespecifically trainedstaffforareassuchas EatingDisorders,OCDtherapy, etc.Atthemoment,itappearsa

oneboxfitsallsystemwhichisnot

idealinmyopinion.Forexample, Autisticindividualsareoften

includedinMentalHealthServices

whenitisnotamentalhealth condition.Therearementalhealth conditionsasaresultofautismat

times,butactuallymanyautistic individualsdonotneedspecific mentalhealthsupport. Offeringcourses/workshopscould alsohelpfillsomeofthegaps wherelessurgentcasescanbe supportedinagroupsession.

Theyhavegonedownhill.More demand,lessprovisionandwhilst reviewsasinplacewecanhope forchange.

Yes,Ibelieveithashighlightedthe significantdeficitintheprovision oflocalMentalHealthServices.

8

unabletocomment

unabletocomment

unabletocomment

betterfacilities/buildings.More awarenessofoutofhoursservices

none

yesithas,beingisolatedhas increasedtheneedforthis.In additionreturningintothe workplacehasbeenanadditional challenge.

9

Yes,aspeoplehavebecomemore isolated,orfeellesssupported. Thiscanalsotaketheformof feelingunsupportedbythe governmentorgeneralpublicin unwillingnesstoprioritisehealth, aswellasisolationfromusual formalorinformalsupport networks.

Nonecometomind

Agreaterneed,butnotacorrespondingly

greatersupplyorbudget

Shorterwaitinglists,more communitysupport,more

integratedsupport(e.g.asapart

ofworkculture,preventing conditionsleadingtoburnout,

moregreeneryintownasthishas documentedbeneficialeffectson mentalhealthetc).Feelingvalued

asahumanbeingbythe government.Thementalhealth staffaregreat,butthefacilities

areterriblestrugglingpeopleare

stuffedintofallingdownbuildings whilemoneyispouredinto financeandinallthe conversationsaboutthenew hospital.Thisissodemoralising.

No,butIthinkitisashamethat thissurveyisnotanonymous,as

manypeoplemaybewaryof givinghonestanswersthereisa

strongperceptionofanti whistleblowerculture,whichwill almostcertainlyhaveaneffecton thequalityofmentalhealthcare

offered.

Morepeopleareneedingsupport withmentalhealthissues,evenif thatisshorttermsupporttodeal

withanxietiescausedbyvarious aspectsofthepandemic.Mental

healthneedstobeamore integratedpartofthecultureand inallworkplaces.Peopleare burningoutbecauseofoverwork mentalhealthsupportisalso supportwithpracticalmatters.

10

Istrugglewiththewaythingshave movedonline.withastutterand strugglingtoreadpeoplewhen anxietyisbadIfeelfarmore comfortabletalkingtopeopleface toface.

Thereseemstobeabetterfeeling ofempathyfrompeoplewhomay notexperienceisolationandanxiety intheirnormaldaytodaylife.

NA

linkwiththesocialsecurityboard astheirbenefitspaneldontseem torecognisehowsomeonewhois completlyreliantonparentalcare asanadult.Thepanelcanberude

andinsultingandtheanxiety surroundingtheannual assessmentitselfisenoughto

causemonthsofanxietybuildup.

Thereseemstobeanexpectation thatallmentalhealthcanbe treatedbyshortcoursesof interventionshoweverIfeelsome casesneedalongtermapproach

andfundingneedstobeinplace forthoseathomecaringforthem andputtingapauseontheirown livestodosoatveryhighexpense

tothemselves.

WorkwithSStorelivefinancial stressfrompeoplewithmental

healthissues.

Inmyopinionithasntdrastically changedthingsforthelongterm

althoughIfeltitdidchangethings

dramaticallyduringtheinitial stages.nowIseetheanxiety remainsovertheuncertintyof planspeoplemakeduetopossible isolationperiodsandguidlinesand restrictionsthatchangewithlittle notice.

11

No.MentalHealthserviceswas notreadyandihavenotnoticed

anyimprovedduringthe pandemic.

Inmyperspective,Ihavenoticed thatadoorofhopeisopensince thepandemic.TheMentalHealth Servicesandsomecareproviders

seemmoreinvolvedand understandingthepubicmental healthinthecommunitysupport.

Ihavenotnoticeanychanges(negative)in thedeliveryofMentalHealthServicesofthe supportintheMentalHealthHospitalorin theGeneralHospital.

TheMentalHealthServicesshould takemorerisksandempower moretheindividualsaccordingthe personcentredsupport.

Inmyopiniontherearelittlesteps achieved,butthereisalongand hardworktodo.

Rethinkingallthesupport providedbythementalhealth servicesandthecareproviders.

12

unsure

Ibelieve,asanoutcomethe opportunitytouseonlinemethods. eventhough,attimesmayhave beenmandatory,hasbeenboth positiveandnegativebecause

peopleshavenotbeenasaccessible, butasanoutcometheopportunity touseonlinemethodshasseemed beneficial.

unsure

betterfacilitiesandbase.Orchid houseseemsveryneglectedand beingsurroundedbythe

derelict,boardedupstsaviours hospitalalonecouldleadto mentalhealthissues

n/a

Ihaveexperiencedwithmy clientsduringthecourseofthe periodofcovid19.Muchhigher leversofanxietyandangerrelated

incidences.especiallyduringthe lockdownperiod

13

Thereseemstobeamuchlonger waitingperiodformentalhealth

servicessinceCovid19hit.no

no

waitinglisthavegottenlonger

mentalhealthservicesshouldbe keptunderstatescontrolandnot placedoncharitableservicessuch

asMind

no

Inmyownopinionandfrommy ownexperience,Ihavefoundthat

mymentalhealthsuffered dramaticallyduringthePandemic, especiallyduringthefirst lockdown,whenIwastoldto shieldduetounderlyinghealth issues.

14

15

TheprovisionofMHSforautistics hasbeenpoorandthiscontinues tobethecase.

N/A

Fromtheperspectiveofthefirst handexperiencessupporting autisticstoaccessMHS,thisfeels verymuchunchangedforthe majorityafewindividualshave beenabletoaccessautismspecific psychologicalsupportthroughthe

JAASteamwhichhasbeenpositive

howevermanyarewaiting unacceptableperiodsoftime. Anotherpositiveisthe discussions/workshopstakenplace todevelopingtheneurological

pathwayforchildren.Itwaspositive

toseethemixofexpertsincluding parentsandpaidcarersandgreatto seesomepositiveoutcomesstarting

tocomefromthati.e.the appointmentofanotherdiagnostic teamtoreducewaitingtimeswhich

hasreportedlybeensuccesful.It wouldbegreattoseesimilar happenregardingadultservices.

N/A

Thelackofabilityforchangetohappenis

themostnegativeaspect.

AccesstoautismspecificMHS's withinatimelymannerthe impactofnothavingthisis damagingpeople'slivesand riasingthecostsofsupport requiredtomanagethe consequences.

Ingeneral,thereisstillstigma attachedtoanyonelivingwitha mentalhealthillness,withthe facilitiesavailableonisland reflectingthat.Thisisespecially trueintheacuteMHSfacilityat Orchidhousewhichformany

yearshasbeendescribedas"unfit

forpurpose"bothbythose externalandinternalto government.Itwasreferencedas apriorityareatochangein2019

howeverthesamefacilityisbeing used!Giventheawarenessthatis presentaroundmentalhealthon

Island,itisworryingand extremelydisapointingthat

upwardof25%ofthepopulation willatsomepointbelivingwitha

mental health illness and must

?

appendixnotattached

Nocomments

Frommyexperienceitisdifficult tosaywhetherornotthe

pandemichaschangedtheneed orrequirementsforMHSinJersey howeverwhatIhaveexperienced isacontinuallackofMHSfor individualswithautismwhichis hugelyimpactingontheabilityof thosewesupportatAutism Jersey.

Ihavenothadanyexperienceof anyonecloseorcolleagueusing

theservice.